Ideas and support on the dreadful pacing
Pacing on a daily basis is constantly stressful and most want to rebel against it for one reason or another. This picture is relevant because there is a beautiful barrier to the sky, but the sky really is the limit!
Over the years, you get used to pacing because it is a must in the recovery process. Everyone paces in their own way and that's the key when managing the illness.
Similar to the High5 Moments, High5ME plans to spread the word about your pacing successes, so get in touch!
- For me, having a routine with pacing is essential. Not always doable because life throws curve balls and it isn't good for the soul to have a set routine, but having a small routine - placing rest in, if nothing else, can really help suffers stay consistent.
- Suffers are torn in two - do you rest and do what's needed to help you get the through the next hour or do you carry on for fear your drawing attention to the fact you need to rest? It's a constant battle and you may never get it right - but go with what your body is telling you. Easier said than done!
Remember, you are not alone with pacing!
Here is an article about The Perrin Technique. High5ME supports new research in the the illness, however does not endorse any treatments or medication without seeking professional advice.
THE PERRIN TECHNIQUE
The Perrin Technique is a specialised
doctoral research based, Osteopathic approach, to the management and improvement
of symptoms of chronic fatigue, post viral fatigue, benign Myalgic
Encephalomyelitis and Chronic Fatigue immune Dysfunction syndrome, using a
manual system of diagnosis and treatment that has helped many hundreds of
patients with CFS/ME, since 1989.
Its effectiveness was tested using two separate clinical trials. The first
examined the change in the symptoms following a year of treatment. The second
repeated the first study and used MRI scanning, in order to examine further the
possible mechanisms of the improvement. In addition to recent release internal
audit statistics that can be seen at http://www.forme-cfs.co.uk/research.html,
which showed an average of 81% overall improvement.
There are currently over 50 licensed Perrin Technique practitioners treating
hundreds of CFS/ME patients weekly throughout the UK.
Raymond Perrin’s research at the University of Salford in conjunction with
the University of Manchester, coupled with the hundreds of successful clinical
case studies and the latest findings in neurophysiology, has provided strong
evidence that CFS/ME involves a disturbance of the drainage of toxins from the
brain and muscles. These poisons often enter the body in the form of viruses,
bacteria and other microbes, parasitic infection or due to environmental toxins
such as pesticides.
However, many toxins are simply an overproduction of chemicals naturally
produced within the body to help the immune system with fighting infections,
inflammation and stress. Constant physical and emotional stress can lead to this
type of overproduction. The excess of some toxins in the brain and spinal cord
should drain out into lymph vessels and be broken down by the body’s lymphatic
system and liver. CFS/ME patients have a reversed drainage that leads to toxins
building up in the central nervous system causing the dysfunction of different
parts of the brain and spinal cord. This explains the many different symptoms
complained of by CFS/ME patients.
The treatment aims at manually stimulating the drainage of the offending
toxins from the central nervous system with gentle lymph drainage into the
larger veins eventually reaching the liver where the poisons are finally
rendered harmless. Gentle articulation, stretching and relaxation of the
surrounding muscles together with the treatment to the lymphatics eventually
improve the health and function of the muscles and brain. Usually symptoms
initially worsen as the toxins drain out but after a few weeks, or months in the
worst cases, the patient should begin the road to recovery.
What is predominantly found in patients with CFS/ME is a restricted dorsal
spine. Frequently the entire thoracic region is stiff, but occasionally only a
few segments are affected. There are two sympathetic trunks that are integrally
related to the overall structure of the area. Thus by reducing the mechanical
irritation at this region as well as relaxing disturbed afferent impulses, the
dysfunction of the sympathetic nervous system can be corrected.
This can be assisted with Osteopathic approaches and the treatment to the
cranio-sacral rhythm, that has been found to be very effective at restoring
energy and improving the cognitive ability of the patient and is thus extremely
useful in the overall treatment.
The treatment schedule is the protocol followed throughout the year of the
clinical trials. It alters slightly depending on the physical state of the
patient and on the symptom picture at that particular stage in their therapy.
The effectiveness of this can be seen in the independent study of the ME
associations major survey in 2010, looking at illness management. Published by
The ME Association, May 2010.
http://www.meassociation.org.uk/wp-content/uploads/2010/09/2010-survey-report-lo-res4.pdf.
This approach may assist in the patient living a fuller and more healthy
lifestyle. For more information on this approach, please look at the official
Perrin Technique website www.theperrinclinic.com.
Michael Parr is the registered practitioner of the Perrin Technique for the
Cambridge and Stevenage zones, and is also the Official Locum for the Perrin
Clinic. You can find his Hertfordshire based home visit website at
www.OsteopathyAtHome.co.uk and also his other place of clinical practice, in
Cambridgeshire www.Physic.co.uk .
This specialised Osteopathic approach to chronic fatigue / ME, is currently
preparing to undergo approved in-house NHS trials for its effective diagnostics.
Any donation support to see this study progress and show the diagnostic accuracy
of the approach, can be made to the national charity that is funding the
research www.forme-cfs.co.uk .
Over the years, you get used to pacing because it is a must in the recovery process. Everyone paces in their own way and that's the key when managing the illness.
Similar to the High5 Moments, High5ME plans to spread the word about your pacing successes, so get in touch!
- For me, having a routine with pacing is essential. Not always doable because life throws curve balls and it isn't good for the soul to have a set routine, but having a small routine - placing rest in, if nothing else, can really help suffers stay consistent.
- Suffers are torn in two - do you rest and do what's needed to help you get the through the next hour or do you carry on for fear your drawing attention to the fact you need to rest? It's a constant battle and you may never get it right - but go with what your body is telling you. Easier said than done!
Remember, you are not alone with pacing!
Here is an article about The Perrin Technique. High5ME supports new research in the the illness, however does not endorse any treatments or medication without seeking professional advice.
THE PERRIN TECHNIQUE
The Perrin Technique is a specialised
doctoral research based, Osteopathic approach, to the management and improvement
of symptoms of chronic fatigue, post viral fatigue, benign Myalgic
Encephalomyelitis and Chronic Fatigue immune Dysfunction syndrome, using a
manual system of diagnosis and treatment that has helped many hundreds of
patients with CFS/ME, since 1989.
Its effectiveness was tested using two separate clinical trials. The first
examined the change in the symptoms following a year of treatment. The second
repeated the first study and used MRI scanning, in order to examine further the
possible mechanisms of the improvement. In addition to recent release internal
audit statistics that can be seen at http://www.forme-cfs.co.uk/research.html,
which showed an average of 81% overall improvement.
There are currently over 50 licensed Perrin Technique practitioners treating
hundreds of CFS/ME patients weekly throughout the UK.
Raymond Perrin’s research at the University of Salford in conjunction with
the University of Manchester, coupled with the hundreds of successful clinical
case studies and the latest findings in neurophysiology, has provided strong
evidence that CFS/ME involves a disturbance of the drainage of toxins from the
brain and muscles. These poisons often enter the body in the form of viruses,
bacteria and other microbes, parasitic infection or due to environmental toxins
such as pesticides.
However, many toxins are simply an overproduction of chemicals naturally
produced within the body to help the immune system with fighting infections,
inflammation and stress. Constant physical and emotional stress can lead to this
type of overproduction. The excess of some toxins in the brain and spinal cord
should drain out into lymph vessels and be broken down by the body’s lymphatic
system and liver. CFS/ME patients have a reversed drainage that leads to toxins
building up in the central nervous system causing the dysfunction of different
parts of the brain and spinal cord. This explains the many different symptoms
complained of by CFS/ME patients.
The treatment aims at manually stimulating the drainage of the offending
toxins from the central nervous system with gentle lymph drainage into the
larger veins eventually reaching the liver where the poisons are finally
rendered harmless. Gentle articulation, stretching and relaxation of the
surrounding muscles together with the treatment to the lymphatics eventually
improve the health and function of the muscles and brain. Usually symptoms
initially worsen as the toxins drain out but after a few weeks, or months in the
worst cases, the patient should begin the road to recovery.
What is predominantly found in patients with CFS/ME is a restricted dorsal
spine. Frequently the entire thoracic region is stiff, but occasionally only a
few segments are affected. There are two sympathetic trunks that are integrally
related to the overall structure of the area. Thus by reducing the mechanical
irritation at this region as well as relaxing disturbed afferent impulses, the
dysfunction of the sympathetic nervous system can be corrected.
This can be assisted with Osteopathic approaches and the treatment to the
cranio-sacral rhythm, that has been found to be very effective at restoring
energy and improving the cognitive ability of the patient and is thus extremely
useful in the overall treatment.
The treatment schedule is the protocol followed throughout the year of the
clinical trials. It alters slightly depending on the physical state of the
patient and on the symptom picture at that particular stage in their therapy.
The effectiveness of this can be seen in the independent study of the ME
associations major survey in 2010, looking at illness management. Published by
The ME Association, May 2010.
http://www.meassociation.org.uk/wp-content/uploads/2010/09/2010-survey-report-lo-res4.pdf.
This approach may assist in the patient living a fuller and more healthy
lifestyle. For more information on this approach, please look at the official
Perrin Technique website www.theperrinclinic.com.
Michael Parr is the registered practitioner of the Perrin Technique for the
Cambridge and Stevenage zones, and is also the Official Locum for the Perrin
Clinic. You can find his Hertfordshire based home visit website at
www.OsteopathyAtHome.co.uk and also his other place of clinical practice, in
Cambridgeshire www.Physic.co.uk .
This specialised Osteopathic approach to chronic fatigue / ME, is currently
preparing to undergo approved in-house NHS trials for its effective diagnostics.
Any donation support to see this study progress and show the diagnostic accuracy
of the approach, can be made to the national charity that is funding the
research www.forme-cfs.co.uk .